|Alliance for European Diabetes Research (EURADIA)||As a unique alliance of NGOs and pharmaceutical companies, EURADIA’s mission is to improve the lives of people affected by diabetes both now and in the future, through advocacy of diabetes research in Europe at the highest political and societal levels of influence, and by shaping the allocation of resources for diabetes research in Europe through increased awareness.
|EuropaBio||EuropaBio's mission is to promote an innovative and dynamic biotechnology-based industry in Europe. EuropaBio, (the European Association for Bioindustries), has 81 corporate and associate members operating worldwide and 25 national biotechnology associations representing some 1800 small and medium sized enterprises.|
|European Academy of Paediatrics (EAP)||The European Academy of Paediatrics exists to promote the health of children and young people in Europe.
It aims to improve standards in training, service and research and to represent the professional interests of paediatricians in the EU.
It incorporates the section of paediatrics of the European Union of Medical Specialists and therefore has influence in the political arena to advocate for children and young people as well as for the profession.
|European AIDS Treatment Group (EATG) ||Founded in 1991 as a co-operative structure of people from different nationalities, the European AIDS Treatment Group is a growing group of treatment activists from 31 European countries. To secure its impartiality the EATG receives funding from a variety of private and public funders. One of their guiding principles is to reflect the diversity of people living with HIV and their advocates. Our new website provides the opportunity to share information in a more effective way.|
|European Association for research on alternating hemiplegia (ENRAH) ||ENRAH is a patient-driven non-profit organization founded in Vienna, Austria in April 2003 to forward research on Alternating Hemiplegia of Childhood (AHC) and other related rare pediatric neurological diseases by bringing together patients and their families with competent clinicians and relevant researchers. ENRAH combines relevant expertise to create the interface for sustainable research and the development of new treatments for these diseases. |
|European Cancer Patient Coalition (ECPC)||Established in 2003, The European Cancer Patient Coalition is the voice of the European cancer patient community, uniquely representing the interests of all cancer patient groups from the major to the rarer cancers. It has been established to represent the views of cancer patients in the European healthcare debate and to provide a forum for European cancer patients to exchange information and share best practice experiences.|
|European Clinical Research Infrastructures Network (ECRIN)||Based on the connection of national networks of clinical research centres and clinical trials units, the EU-funded ECRIN programme consists of integrating national clinical research facilities into a EU-wide network, able to provide support to clinical research in any medical field, and for any type of clinical research.|
|European Federation for Pharmaceuticals Sciences (EUFEPS)||The European Federation for Pharmaceutical Sciences (EUFEPS) is the only pan-European body to represent the interests of scientists in industry, academia, government and other institutions engaged in drug research, development, regulation and policymaking through Europe. Founded in 1991, it is there to serve and advance excellence in the pharmaceutical sciences and innovative drug research. |
|European Federation of Neurological Associations (EFNA)||The European Federation of Neurological Associations (EFNA) brings together European umbrella organisations of neurological patient advocacy groups, to work with other associations in the field of neurology, including the European Federation of Neurological Societies (EFNS), in what has been termed a "Partnership for Progress". |
|European Federation of Pharmaceutical Industries and Associations (EFPIA)||EFPIA represents the pharmaceutical industry operating in Europe. Through its direct membership of 32 national associations and 44 leading pharmaceutical companies, EFPIA is the voice on the EU scene of 2,100 companies committed to researching, developing and bringing to patients new medicines that improve health and the quality of life around the world. |
|European Genetic Alliances’ Network (EGAN)||EGAN is an alliance of national genetic alliances and European disease specific patient groups with a special interest in genetics, genomics and biotechnology. EGAN is working for a voice in research and health policy and seeks a world in which genetic diseases are understood, effectively treated, prevented and the people affected supported.|
|European LeukemiaNet (ELN)||European FP6 Project aiming at strengthening and developing scientific and technological excellence in research and therapy of leukemia (CML, AML, ALL, CLL, MDS, CMPD) by integration of the leading national leukemia networks and their interdisciplinary partner groups in Europe|
|European Medical Association (EMA)||The EMA’s mission is to:
. add a European dimension and value to the daily doctor’s practice
. bring together individuals and organisations working in the European Health Community
. provide a meeting point between East and West
. create an interactive network for its members
. contribute to the harmonisation of the European Medical practice|
|European Network for the Advancement of Clinical Gene Transfer and Therapy ||EC funded network of excellence fostering interaction of all stakeholders in the field in order to facilitate and help harmonise Ethical, Quality, Safety, Efficacy and Regulatory issues.|
|European Older People's Platform (AGE)||AGE - the European Older People's Platform is a European network of organisations of people aged 50+ and represents over 22 millions older people in Europe. AGE aims to voice and promote the interests of the 150 millions inhabitants aged 50+ in the European Union and to raise awareness of the issues that concern them most.|
|European Organisation for Research and Treatment of Cancer (EORTC)||The aims of the EORTC are to develop, conduct, coordinate and stimulate laboratory and clinical research in Europe to improve the management of cancer and related problems by increasing survival but also patients’ quality of life.|
|European Patients Forum (EPF)||EPF is a pan European patientsï¿½ representative organisation manifesting the solidarity, power and unity of the EU patientsï¿½ movement. EPF currently represents 49 member organisations, which are chronic disease specific patient organisations operating at EU level and national coalitions of patientsï¿½ organisations. EPF reflects the voice of an estimated 150 million patients affected by various diseases in the EU and their families.|
|European Platform for Patients Organisations, Science & Industry (EPPOSI) ||The EPPOSI is a EU patient-led partnership between patients, industry and academic science, founded in 1994 for the exchange of information and discussion of policies in EU human healthcare.|
|European Society for Medical Oncology (ESMO)||The European Society for Medical Oncology (ESMO) is the leading European non-profit, professional organisation for medical oncology promoting multidisciplinary cancer treatment around the world.|
|European Standards and Guidance on Privacy and Confidentiality in Healthcare ||EuroSOCAP is a European Commission funded project to confront and address some of the challenges and tensions created within the healthcare sector between the anticipated scenarios of the user friendly information society and the fundamental ethical requirements of privacy and confidentiality of healthcare information. The Project aimed to build an accessible knowledge base, a set of standards and guidance which will inform professional practice, supporting practice as well as protecting patients, throughout the healthcare sector of the European community. Particular attention was paid to the requirements of vulnerable patient populations.|
|EURORDIS||The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases. Eurordis’ mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives. |
|Heads of Agencies (HoA) ||This is the common website for the human and veterinary medicines authorities in Europe. The Heads of Member States Competent Authorities meet regularly to provide a focus for leadership within the Community System of Medicines Regulation, and to provide a forum for the exchange of views on issues of Community interest.|